Mission

The primary mission of the Parent’s Guide to Cord Blood is to educate parents with accurate and balanced information about cord blood medical therapies and cord blood storage options. Their website explains the motivations for banking umbilical cord blood, and the difference between donating cord blood to a public bank versus paying privately for family storage.

The second mission of the Parent’s Guide to Cord Blood is to analyze new developments in medical research or public policy which could expand the use of cord blood.

Organisation

The Parent’s Guide to Cord Blood started out as a website in 1998. It was intended as an informal public service project in memory of Shai, the daughter of the founder Dr. Frances Verter. In 2007 a Board of Directors was recruited, and the Parent’s Guide to Cord Blood incorporated as a non-profit foundation. They have received tax-exempt status under section 501(c)(3) of the USA Internal Revenue Code.

All donations to support the foundation are eligible for a tax deduction on United States tax returns.

Newsletters

Here you can view the most recent news and a full archive of news from Parent’s Guide to Cord Blood

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Parent’s Guide to Cord Blood Foundation

History

1998

Launch of the original website hosted by GeoCities. The initial version only covered family cord blood banks. The design was donated by Arlene E. Jacobs, in memory of her son Kevin W. Jacobs.

1999

Wrote questionnaire for interviewing family banks.

2000

Added family cord blood banks outside the USA, which at that time only numbered a handful.

2001

Registered the internet domain name “ParentsGuideCordBlood”.

2003

Included public cord blood banks within the USA.

Developed the first listing of diseases treated by cord blood that grouped them into the categories: standard, clinical trial, and experimental.

2005

Moved the site to the host Heller Information Services and adopted a new web design created by Exusu Design of Haselberg, Germany.

2007

Incorporated as a 501(c)(3) non-profit foundation.

2008

Created our first educational brochure.

2010

Modified the list of diseases treated with cord blood to clarify which ones use the patient’s own cells versus cells from a donor; again the first web site to do this.

2011

Launched the first searchable map of donation spots across the USA, for which Dr. Verter received the NMDP 2011 Lifeline Award. Adopted a logo and new web design created by Fathom Creative of Washington, DC, USA.

2012

Launched a monthly newsletter. Started listing family banks by donation level. Hired Sandeep Kadam for further web development.

2013

Added donations spots in Canada to the searchable map, and added public cord blood banks in Canada and Mexico to the list.

2014

Formed partnerships with the two leading organizations that accredit cord blood banks: FACT-Netcordand AABB. Launched a mobile version of the web site. Hired Pedro Silva Couto to help with the international survey of family cord blood banks.

2015

Hire Lizette Dunay to help answer parent inquiries.

2016

Launch a new website designed by Peter Lozovitsky. This one geolocates readers and automatically provides them with cord blood options and banks in their country. We now include public banks worldwide. The website will also offer translations into multiple languages.

Contact Us

Call us on +44(0)1895 424430 or you can send us a quick message and we'll aim to get back to you within 48 hours.

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